Fighting Bipolar Depression and Chronic Pain: When to Just Stay in Bed

I spend a large part of my day in bed. I’ll admit it right now, I do. I sleep at night and most of the morning and get up for the afternoon and early evening time to do some self care and house chores and back to to bed again I go.

Many of the morning hours are spent sleeping away migraine, of which I have chronically. Depression plays a role in my perpetual inertia as well.

It seems the more that is demanded of me, the more migraines I get and the more depressed I become. Therefore, it has become this catch twenty two of not doing because of the fear of becoming sick and being sick, so not doing.

It sounds like a fairly pathetic life if you’ve read how I’ve written it out thus far, but there are so many things I do on a fairly regular basis when I am out of bed. For example, I cook and clean and write and create art and raise children! I take pictures and participate in social groups and keep up with a multitude of doctors appointments. I am a dutiful wife, a generous friend, and a eager volunteer.

So many things I am capable of, but I’m only able to do them for short spurts of time with much rest in between activities. That I’m able to do them at all I so am grateful!

Mental illness and chronic pain have taken a typical life from me, but I still have a life and this is what it looks like.

Is your life with mental illness typical or atypical? Do you have trouble getting out of bed?

Mental Health Blogging is Cool

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I have been blogging here for eight years now. I have written a lot of posts I am proud of and some that are so-so like the medical research ones.  I say the are so-so because they are kind of fillers for the times I was taking a break from writing anything of personal substance because I became super paranoid that people in my real life were reading my blog and I didn’t feel like I could be as candid as a result.

My two most popular posts year after year are How to Deal With Complex PTSD Triggers and Are People with Bipolar Disorder Lazy?

My highest traffic years brought over 11,000 views and 9,200 unique visitors, which I know many people see in a month’s time, but for me this was good.

My subscriber count is just shy of 800 people. I have super slacked off on reaching out to other bloggers over the last few years and I took a year off from Facebook which hurt my page engagement, of course.

I’ve been back on Facebook for about six months now and things are finally starting to pick back up. It’s nice to finally know my messages of encouragement and hope are reaching more people again.

I’m fairly active on Twitter where people are really encouraging and friendly. I always enjoy sharing there.

I hope you find my blog useful and share its posts on social media and say, hi, and follow me on social media, too. I love to connect with other people and share ideas and thoughts.

Because I Journal…

I’ve been closely tracking my moods for the past four months because I slipped into a depressive episode back in August of this year. I keep an online journal that is password protected so that I am sure it is for my eyes only. This allows me to be as candid as I want to be, which I find to be extremely therapeutic.

I typically write in my journal every other week or so, making note of my mood or state of mind and writing all about what is going on in my life with regard to myself and others and my feelings and thoughts regarding all of these things. I also write about my hopes and fears and goals as they come to mind in random ways.

It has been a rough couple of months as looking back on my journal entries will reveal, peaking with a practice-go at writing a suicide note. I didn’t plan on writing one, but I got to writing about all of the hard things I’ve been through in my life and it just kind of turned into one. Then the weirdest thing happened: the next day I felt great and my mood has steadily improved since then. It’s like I just had to get the bad thoughts out of my head and on to the paper for them to no longer have power over me. I can’t say that it will work for you like this, but for me, it just does sometimes.

I am going on two weeks of an upswing in my mood and I’m real happy that things don’t seem so bad these days. They’re not wonderful, but they’re not unbearable like before, and you can bet I am writing praises about that!

Why I Never Get Used to Being Stable as a Person with Rapid Cycling Bipolar Disorder

Not barely one month ago I wrote here about my mental illness, and praised the universe for my glorious period of stability.  Months of relative non-dramatic and chaos and anxiety-free days left me to do as I pleased with family and friends; with hobbies and productive work.  I even made money doing something I absolutely love to do!  ME!  Someone on disability, making a dime doing a creative job for people that I would be doing anyway on my own.  It was a dream come true this summer, I tell you, a dream come true!  And then IT happened.

One day, all of a sudden, I dreaded the next paid gig that I was so eager to do just weeks prior.  The thought of having to do it; of being obligated to do it now weighed so heavily on me I started feeling panicky.  I was overwhelmed at the thought of all it entailed and so, so unmotivated to go through with it.  All I wanted to do was crawl into a hole and hide for the next … well, indefinitely.  I couldn’t focus on the amount of steps the whole job called for and I especially couldn’t cope with the social interactions it forced me to have.

Then two weeks later, the kids went back to school and things only got worse from there.  My depression plummeted to another level as I spent every day at home alone in bed with no purpose other than to get up when they came home seven hours later.  I came across this awesome mental health pain scale put out there by Rori, the Graceful Patient, and thought, “By God, I am already at a solid 6 going on a 7 here, and I was a fricking 1 five weeks ago!”

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As an aside, before my stable period this summer, I was in a mild depression for several months through the end of spring.  This is me.  This is the life of rapid cycling bipolar disorder.  It is not pretty or fun or predictable.  Although, many times the depression does coincide with transitional events like the kids starting school in the fall and ending the school year in the spring, so there is some predictability in that sense.  But, for the most part it is riding a mood wave that ebbs and flows over the course of weeks or months, sometimes even days when it gets really ugly.

So, here I am, turning to the thing I always turn to when I start to feel crazy: writing.  I get into that darkness and I write myself out (i.e, “write into the light” = this blog’s name.)  I also went and saw my doctor, of course, and told her what was going on.  So, I’m starting yet another new med this week.

I have been on so many medications I couldn’t even name them all.  No joke!  I seriously wouldn’t remember all of them that I’ve tried over the last 17 years.  I do know we make changes or adjustments at least a couple of times a year due to my rapid cycling.  She told me one time she has some patients with bipolar that go years without a med adjustment but not me and my rapid cycles.  I’m what they call “hypersensitive”…to people, to meds, to situations, to changes, to seasons, to temperature, to noise, to lights, crowds, to smells.  I also fall under the description of an “empath” as well, which explains a lot of my ills after being around certain people and large crowds.  It also explains my excellent intuition.

All of this just makes me realize this whole mood disorder, sensory system, personality thing is very complicated and intertwined.  Who’s to say what one thing is and what’s another or where one thing begins and another ends?  People are complex.  Don’t judge or compartmentalize, if you can help it.  We are all so much more than our labels.  Kind of makes me want to retitle my post.  But, for Google’s sake I won’t.  Google search likes labels. 🙂

Do you or anyone you know experience rapid cycling moods?  How do you cope with it?  What helps you manage?

What it is Like to Be Mentally Stable

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I was sitting here thinking about how I haven’t thought about the fact that I have bipolar disorder in a while.  About two weeks ago I had a day or two of feeling depressed and it reminded me of the “old days” of when I was in a true clinically depressed state of being unable to get out of bed or eat or shower for weeks on end; of when I didn’t know how I was going to make it through another day of living; of how I hoped I didn’t make it through alive.  I just wanted to die.

Thankfully, I don’t get that low for that long anymore.  I also don’t get high enough to be up until two or three (or four) in the morning writing or painting or working on any other various creative projects that always turned out to be a waste of time.  Many of the projects I start these days I finish, and they have some sort of functional goal or purpose to them as opposed to being just some sort of random jibberish.

Some major medication trials until the right combo was found and a complete overhaul in therapy to treat my childhood traumas both played a role in the stability I am enjoying today.  It takes work, effort, and the help of good and caring doctors and therapists, but mental stability can happen.

I am fully aware that one of these days I may wake up and find myself in a depressive or hypomanic state once again that lasts more than a day or two as they have been.  I dread the day if it ever comes.  However, luckily, my anxiety disorder is also under control enough that this thought is something I can let go of and simply go on living my life as is until further notice.  Thanks be to God!

Bipolar Disorder and Chronic Pain

The Bipolar-Pain Connection

According to recent research, about 14% of people with bipolar disorder experience migraines and another 24% experience some other form of chronic pain. That’s almost a third of people with bipolar disorder who are in some sort of serious pain!

In particular, migraines affect 1 in 7 persons with bipolar disorder, which is 3 times more likely than the general population. I’ve been living with chronic migraine for ten years now. Some days I feel like it’s a death sentence. Some days I wish that sentence was carried out. My doctors are still trying to figure out a way to decrease the frequency of my 8 to 12 migraines per month. Apparently, “bipolar disorder and migraines are multifactorial in etiology—there appear to be vascular, cellular, molecular, neurochemical (serotonergic and noradrenergic), and genetic (KIAA0564) components in common between bipolar disorder and migraine conditions.”

Pain and Mental Illness’s Affect on One Another

In general, people with mental illness who experience chronic pain tend to have worsening symptoms of their illness. Often doctors do not take seriously the complaints of physical pain from those individuals who have mental illness. A lot of times people with mental illness have increased sensitivity to pain because they are experiencing depression. Also, because they are experiencing symptoms of mental illness, many times people with mental conditions do not seek the medical care they need to address their physical pain. This leads to greater functional impairments, poorer quality of life, increased disability, and increased risk of suicide compared to those without pain.

Treatments that Address Pain and Mental Illness

Sometimes tricyclic antidepressants or other select antidepressants can be used to help minimize physical pain symptoms as well as address depression symptoms in some patients. Care needs to be taken in patients with bipolar disorder, however, due to the increased risk of triggering a manic episode in those who take antidepressants alone. Often times, a mood stabilizer will be used in conjunction with the antidepressant in these patients.

This is exactly the treatment I am currently receiving under the care of my physician. I am excited to see if it will decrease the frequency of my migraines while addressing my depression and anxiety symptoms at the same time.

Non-pharmaceutical treatments for physical pain and some mental illness symptoms can include things such as meditation, yoga, exercise, prayer, talk therapy, and diet modifications.

Work with your doctor to figure out what may be the best course of action for you. The most important thing is to not give up hope and to never give up trying to find a way out.

Things are Getting a Little Personal

I noticed over the past year my posts have become somewhat generic and distant, like making small talk with someone at the water cooler. I haven’t offered much of anything in the way of myself or my personal struggles with mental illness. It’s not for lack of having symptoms, trust me! It’s just been easier to report the facts and keep anything extra under wraps.

My fear is mostly that my anonymity will be compromised, so I hesitate to write about anything in too much detail. I suppose my paranoia could be considered a symptom of my anxiety disorder, so there’s that.

I have recently become more open with family and friends about the limitations my anxiety disorder places on me as far as the things I can’t do, the places I can’t go, and the physical pain it causes me, especially if I push myself beyond my limits. I think this has surprised them some these last few months. I’m not sure they understand, but they seem supportive.

I feel blessed that I haven’t had a major depressive episode in quite a while. I do a little dance between hypomania and a brief down fall every spring turn summer, but other than that my mood disorder is fairly stable. It’s just this darn anxiety mixed with intermittent panic attacks.

I’ll continue to write what I know, sharing knowledge about mental health and mental illness, incorporating my voice a little more than I have been lately.

In the meantime, I’d like to know what you would like me to write about. I’ve written meditations, essays, writing prompts, poetry, and reported on research articles. What would you like to see more of?