Fighting Bipolar Depression and Chronic Pain: When to Just Stay in Bed

I spend a large part of my day in bed. I’ll admit it right now, I do. I sleep at night and most of the morning and get up for the afternoon and early evening time to do some self care and house chores and back to to bed again I go.

Many of the morning hours are spent sleeping away migraine, of which I have chronically. Depression plays a role in my perpetual inertia as well.

It seems the more that is demanded of me, the more migraines I get and the more depressed I become. Therefore, it has become this catch twenty two of not doing because of the fear of becoming sick and being sick, so not doing.

It sounds like a fairly pathetic life if you’ve read how I’ve written it out thus far, but there are so many things I do on a fairly regular basis when I am out of bed. For example, I cook and clean and write and create art and raise children! I take pictures and participate in social groups and keep up with a multitude of doctors appointments. I am a dutiful wife, a generous friend, and a eager volunteer.

So many things I am capable of, but I’m only able to do them for short spurts of time with much rest in between activities. That I’m able to do them at all I so am grateful!

Mental illness and chronic pain have taken a typical life from me, but I still have a life and this is what it looks like.

Is your life with mental illness typical or atypical? Do you have trouble getting out of bed?

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Am I My Illness?

I’ve started this place on my phone where I keep blog post ideas and rough drafts because I have so many bits and pieces of information flying through my head at one time that I get completely overwhelmed at the thought of sitting down and writing something out.

I attribute these rapid thoughts to my anxiety disorder or to possible depressive symptoms such as the inability to focus or concentrate long enough to organize disjointed ideas into a single theme.

Then I get to thinking, is this it? Is everything always because of my mental illnesses? Is my difficulty writing or remembering or socializing or driving or losing weight or parenting or making friends all due to mental illness? How do I distinguish that which is part of my personality from that which is my illness? Are they one in the same?

I’m not going to pretend to have the answer and quite honestly this is not a rhetorical question. I would love for some feedback here because I have read on numerous occasions well-meaning memes that state “you are not your illness” when I think sometimes maybe I am.

Because I Journal…

I’ve been closely tracking my moods for the past four months because I slipped into a depressive episode back in August of this year. I keep an online journal that is password protected so that I am sure it is for my eyes only. This allows me to be as candid as I want to be, which I find to be extremely therapeutic.

I typically write in my journal every other week or so, making note of my mood or state of mind and writing all about what is going on in my life with regard to myself and others and my feelings and thoughts regarding all of these things. I also write about my hopes and fears and goals as they come to mind in random ways.

It has been a rough couple of months as looking back on my journal entries will reveal, peaking with a practice-go at writing a suicide note. I didn’t plan on writing one, but I got to writing about all of the hard things I’ve been through in my life and it just kind of turned into one. Then the weirdest thing happened: the next day I felt great and my mood has steadily improved since then. It’s like I just had to get the bad thoughts out of my head and on to the paper for them to no longer have power over me. I can’t say that it will work for you like this, but for me, it just does sometimes.

I am going on two weeks of an upswing in my mood and I’m real happy that things don’t seem so bad these days. They’re not wonderful, but they’re not unbearable like before, and you can bet I am writing praises about that!

Bipolar: Commitment Issues Plus H.O.W. to Journal

There are many difficult aspects of having bipolar disorder. This I know since I suffer from it. The mood instability, which can vary from being manic or very upbeat and reckless to depressed, to the point of being suicidal, can wreak havoc on my life in many ways.

Bipolar and Commitment Issues

One of the main things I experience is the inability to commit to anything long term for fear that what I have the energy and motivation for now I soon will not when a depressive episode takes over. I feel like I have to leave my schedule flexible and open so that I can say no to things at all times without reprecussions.

It is hard to find that kind of arrangement in today’s workplace. Currently, I am self-employed, working independently in the creative arts field and that is going well for me.

Still I would rather be able to commit to more long term projects in my field so as to collaborate with other artists. It is isolating to have to do it this way.

Bipolar and Isolation

Bipolar by nature is an isolating disorder. It sets me apart from my family and friends because they do not have the disorder and do not understand the fluctuations in my moods, the agitation, anxiety, irritability, anger, saddness, or suicidal thoughts.

However, this is okay. I have my doctor and counselors and peers, including you, dear reader, who know exactly what I am talking about.

Bipolar and Journaling

I also have one of the best ways to cope with the frustrations of dealing with all of these bipolar difficulties and that is to write about them! Have you ever tried it? If not, please do!

Get it all out on paper or the screen. Spill it out of your head so it’s not mucking up your thoughts anymore. If you don’t release it physically, it will never go away.

H.O.W. to Journal

Just do what you can, when you can. It will all work itself out if you keep an open mind and are willing to do the work and be honest. That is H.O.W. you can journal:
1)Honesty
2)(with an) Open mind
3)Willingness (to do the work.)

If you have any questions or want to chat, leave a comment. Good luck!

Possible New Treatment for Depression

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Researchers have recently found a way to measure neural signals across regions of the brain that decode patterns that represent a person’s current mood. They did this by using the intracranial electrodes already inserted in seven patients who have epileptic seizures. They tracked brain signals across the electrodes and asked the patients to report mood symptoms. From this they developed a decoder that will predict mood variations over time based on brain signals.

Their hope is that from these findings a closed loop system can be developed to treat individuals with depression and anxiety who are treatment resistant to SSRIs, other medications, and standard therapies. This closed loop system would in theory be able to stimulate the appropriate neural regions of the brain needed to affect mood in a positive way in real time.

They think this decoding technology could even be useful for other conditions that are not localized to one area of the brain and are spread out through various regions like depression and anxiety are. Some examples include chronic pain, addiction, and post-traumatic stress disorder.

Source:  University of Southern California. “Breakthrough brain research could yield new treatments for depression.” ScienceDaily. ScienceDaily, 10 September 2018.

Why I Never Get Used to Being Stable as a Person with Rapid Cycling Bipolar Disorder

Not barely one month ago I wrote here about my mental illness, and praised the universe for my glorious period of stability.  Months of relative non-dramatic and chaos and anxiety-free days left me to do as I pleased with family and friends; with hobbies and productive work.  I even made money doing something I absolutely love to do!  ME!  Someone on disability, making a dime doing a creative job for people that I would be doing anyway on my own.  It was a dream come true this summer, I tell you, a dream come true!  And then IT happened.

One day, all of a sudden, I dreaded the next paid gig that I was so eager to do just weeks prior.  The thought of having to do it; of being obligated to do it now weighed so heavily on me I started feeling panicky.  I was overwhelmed at the thought of all it entailed and so, so unmotivated to go through with it.  All I wanted to do was crawl into a hole and hide for the next … well, indefinitely.  I couldn’t focus on the amount of steps the whole job called for and I especially couldn’t cope with the social interactions it forced me to have.

Then two weeks later, the kids went back to school and things only got worse from there.  My depression plummeted to another level as I spent every day at home alone in bed with no purpose other than to get up when they came home seven hours later.  I came across this awesome mental health pain scale put out there by Rori, the Graceful Patient, and thought, “By God, I am already at a solid 6 going on a 7 here, and I was a fricking 1 five weeks ago!”

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As an aside, before my stable period this summer, I was in a mild depression for several months through the end of spring.  This is me.  This is the life of rapid cycling bipolar disorder.  It is not pretty or fun or predictable.  Although, many times the depression does coincide with transitional events like the kids starting school in the fall and ending the school year in the spring, so there is some predictability in that sense.  But, for the most part it is riding a mood wave that ebbs and flows over the course of weeks or months, sometimes even days when it gets really ugly.

So, here I am, turning to the thing I always turn to when I start to feel crazy: writing.  I get into that darkness and I write myself out (i.e, “write into the light” = this blog’s name.)  I also went and saw my doctor, of course, and told her what was going on.  So, I’m starting yet another new med this week.

I have been on so many medications I couldn’t even name them all.  No joke!  I seriously wouldn’t remember all of them that I’ve tried over the last 17 years.  I do know we make changes or adjustments at least a couple of times a year due to my rapid cycling.  She told me one time she has some patients with bipolar that go years without a med adjustment but not me and my rapid cycles.  I’m what they call “hypersensitive”…to people, to meds, to situations, to changes, to seasons, to temperature, to noise, to lights, crowds, to smells.  I also fall under the description of an “empath” as well, which explains a lot of my ills after being around certain people and large crowds.  It also explains my excellent intuition.

All of this just makes me realize this whole mood disorder, sensory system, personality thing is very complicated and intertwined.  Who’s to say what one thing is and what’s another or where one thing begins and another ends?  People are complex.  Don’t judge or compartmentalize, if you can help it.  We are all so much more than our labels.  Kind of makes me want to retitle my post.  But, for Google’s sake I won’t.  Google search likes labels. 🙂

Do you or anyone you know experience rapid cycling moods?  How do you cope with it?  What helps you manage?

What it is Like to Be Mentally Stable

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I was sitting here thinking about how I haven’t thought about the fact that I have bipolar disorder in a while.  About two weeks ago I had a day or two of feeling depressed and it reminded me of the “old days” of when I was in a true clinically depressed state of being unable to get out of bed or eat or shower for weeks on end; of when I didn’t know how I was going to make it through another day of living; of how I hoped I didn’t make it through alive.  I just wanted to die.

Thankfully, I don’t get that low for that long anymore.  I also don’t get high enough to be up until two or three (or four) in the morning writing or painting or working on any other various creative projects that always turned out to be a waste of time.  Many of the projects I start these days I finish, and they have some sort of functional goal or purpose to them as opposed to being just some sort of random jibberish.

Some major medication trials until the right combo was found and a complete overhaul in therapy to treat my childhood traumas both played a role in the stability I am enjoying today.  It takes work, effort, and the help of good and caring doctors and therapists, but mental stability can happen.

I am fully aware that one of these days I may wake up and find myself in a depressive or hypomanic state once again that lasts more than a day or two as they have been.  I dread the day if it ever comes.  However, luckily, my anxiety disorder is also under control enough that this thought is something I can let go of and simply go on living my life as is until further notice.  Thanks be to God!